Our Small Hero
Founded in August 2013, Small Heroes, Mighty Cause raises money to support children with genetic disorders and inspire them to live mighty lives.
Organized by the friends and family of Colin Schlemme, the first events raised funds for the Cure SMA foundation. At 15 months old, Colin was diagnosed with SMA Type 2, leaving him with low muscle tone that prevented him from reaching childhood milestones such as sitting up, crawling, and walking. After receiving care packages and information from the CureSMA organization in the early years of Colin’s diagnosis, Colin’s parents Travis and Amanda Schlemme, knew they wanted to give back and help other families in similar situations. In the three 5K’s they hosted in Cascade, Iowa, between 2013-2016, over $100,000 was raised to help continue research projects for a treatment for SMA and to support other children and families with genetic disorders.
In 2017, after countless volunteer hours and millions of dollars raised by the SMA community, the first treatment for SMA, Spinraza, was approved by the FDA. Since starting the Spinraza treatment, Colin has has made several small, but mighty gains in his strength including opening a juice box by himself and making sounds when he claps his hands. The future is bright for SMA treatment, and we have all our generous participants and donors to thank.
Facts about SMA (Courtesy of the Gwendolyn Strong Foundation):
SMA kills more children than any other genetic disease.
SMA is estimated to occur in 1 out of every 6,000 births.
1 in every 35 people, or nearly 10 million Americans, UNKNOWINGLY carries the gene responsible for SMA. Few have any known family history.
SMA is a pan-ethnic disease and does not discriminate based on race, ethnicity, or gender.